The Alkaptonuria Society
An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources.
http://www.alkaptonuria.info/ |
The Noonan Syndrome Support Group
Information about this organization as well the disease itself. Offers news, events, a survey, a newsletter and further resources.
http://www.noonansyndrome.org/ |
The Stennis Foundation
Raising public awareness regarding Metachromatic Leukodystrophy (MLD) as well as funds for MLD research.
http://www.stennisfoundation.org/ |
The Sturge-Weber Foundation
A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
http://www.Sturge-Weber.com |
Your Genes, Your Health
a multimedia guide to specific individual genetic disorders from the Dolan DNA Learning Center at Cold Spring Harbor Laboratory.
http://www.yourgenesyourhealth.org/ |
Your Genes, Your Health
The DNA Learning Center's multimedia guide to genetic disorders. Complete in depth articles about each disease listed.
http://www.ygyh.org |
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