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Organizations Listings

American Foundation for Urologic Disease

Anaphylaxis Foundation and Anaphylaxis Network of Canada
offers product alerts and registry for product recalls and research and advocacy data.

Canadian Bacterial Diseases Network

Canadian Organization for Rare Disorders
committed to the enhancement of the lives of all persons affected by rare disorders.

Children Afflicted with Lymphatic Malformations - CALM
organization of parents and children afflicted with lymphatic malformations. Offers information, support, medical references, and encourages research to improve treatment.

Global Fund to Fight AIDS, Tuberculosis, and Malaria
works to mitigate the impact caused by HIV/AIDS, tuberculosis, and malaria in countries of need.

Histiocytosis Association of America Virtual Offices
online support for patients with histiocytosis their family and friends.

International Adhesions Society

International Immunocompromised Host Society
Offering a multidisciplinary forum for scientific and clinical interchange to improve management of Immunocompromised Patients.

International Society for the Study of Cough
Promotes research in cough and encourages the exchange of ideas and information.

Mia Hamm Foundation
supporting research of bone marrow diseases.

Myoclonus Research Foundation

National Association for Down Syndrome (NADS)
news, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.

National Association for Incontinence

National Gaucher Foundation

National Pediculosis Association
national clearing house on head lice and scabies issues.

Nevus Network
support group for individuals with giant congenital nevi and their families.

Parent to Parent of Georgia, Inc.
provides support and information to parents who have a child with a disability or special health care need.

Pituitary Tumor Network Association
dedicated to support, pursue, encourage, promote, and, where possible, fund research on pituitary tumors in a sustained and full-time effort to find a cure for pituitary diseases.

Stevens Johnson Syndrome Foundation
provides medical communities and the public with information and support.

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